Sebi's story
www.lovebubbleboy.com
 | |  | |  | |  | |  | |  | |  | |  | |  |
www.lovebubbleboy.com
Sebastian Luis Guarneros was born on June
11th 2007 he was what the doctors called a
normal healthy baby boy, if he cried it was
only because he was hungry, tired or wet -
the first few months were a breeze.
By October 07 we noticed diarreah, it was
a matter of concern because it went for
three weeks and after a few days the
fevers started -some high. This went on
for almost two months. He would have a
fever for a couple days then he seemed to
be a bit better (except that he still had
diarrhea and now also a runny nose). By
December it was obvious that something
strange was going on. We were referred to
a GI specialist at Riley/Clarian North who
did blood work and on that same night
(January 4th) we were admitted in the
Riley downtown ER where hours later he
was diagnosed with bacterial pneumonia.
He was discharged five days later and sent
home on a picc line (an IV that goes for
antibiotics too strong to take orally). I
administered his medicine through this line
(quite a process) for a week and he seemed
to be better except for a little
cough...that turned into viral pneumonia a
week or so later. When he still had lung
issues after that diagnosis, then he was
treated for asthma (I should say that there
were countless doctor and specialist visits
up to this point).
After a few weeks he was not responding
to the medication and day by day he was
eating less and less until it was only
milk...then he slowly stopped taking even
that.
A couple times we were told either it was
a cold (an ER visit) or he needed more
asthma medication (a specialist visit). At
this point I felt helpless - I felt like I was
just watching him deteriorate...
Fortunately he had a well visit with his
pediatrician a couple of days after his
specialist visit. and Dr. Stephanie
Bergstein, MD also felt concerned. By then
he had dropped to 6% in weight (basically
failure to thrive) and showed no signs of
improvement. That night March 13th she
called Riley North Children's hospital and
Sebastian was admitted.
11th 2007 he was what the doctors called a
normal healthy baby boy, if he cried it was
only because he was hungry, tired or wet -
the first few months were a breeze.
By October 07 we noticed diarreah, it was
a matter of concern because it went for
three weeks and after a few days the
fevers started -some high. This went on
for almost two months. He would have a
fever for a couple days then he seemed to
be a bit better (except that he still had
diarrhea and now also a runny nose). By
December it was obvious that something
strange was going on. We were referred to
a GI specialist at Riley/Clarian North who
did blood work and on that same night
(January 4th) we were admitted in the
Riley downtown ER where hours later he
was diagnosed with bacterial pneumonia.
He was discharged five days later and sent
home on a picc line (an IV that goes for
antibiotics too strong to take orally). I
administered his medicine through this line
(quite a process) for a week and he seemed
to be better except for a little
cough...that turned into viral pneumonia a
week or so later. When he still had lung
issues after that diagnosis, then he was
treated for asthma (I should say that there
were countless doctor and specialist visits
up to this point).
After a few weeks he was not responding
to the medication and day by day he was
eating less and less until it was only
milk...then he slowly stopped taking even
that.
A couple times we were told either it was
a cold (an ER visit) or he needed more
asthma medication (a specialist visit). At
this point I felt helpless - I felt like I was
just watching him deteriorate...
Fortunately he had a well visit with his
pediatrician a couple of days after his
specialist visit. and Dr. Stephanie
Bergstein, MD also felt concerned. By then
he had dropped to 6% in weight (basically
failure to thrive) and showed no signs of
improvement. That night March 13th she
called Riley North Children's hospital and
Sebastian was admitted.
