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Sebi's story
www.lovebubbleboy.com
Family prepares for SCIDS baby's homecoming
Anne Marie Tiernon/Eyewitness News
Indianapolis - Sebastian Guarneros is on his way home. With this family's new member comes new house
repairs on their home to ensure his safety.
Sebastian is getting medicine and food through a tube in his nose. Other than that, to the naked eye, there is
no sign of the battle this baby is now waging.
The good news is that his months of residence at Riley are now over. The Guarneros family are working to
make home a safe haven for baby Sebastain.
"Everything needs to be as clean as can be because something that wouldn't bother you or I can get into his
lungs and start an infection," said mother, Karin Guarneros.
Sebastian is now one eyar old. He was born without an immune system, and was diagnosed with SCIDS last
year.
He lived at Riley hospital where he got a stem cell transplant in hopes that a new immune system would
develop. Now 46 days out, he's back home with his big brother, Xavier.
"I like having him home now because I love Sebastian," said Xavier.
Reuniting the brothers took a lot of work. Angie's List and the Wishmaker program stepped in.
"We sent out emails to contractors on the list, and within15 minutes, Lifestyle Group responded and were
willing to take on the project," said Angie's List founder Angie Hicks.
They installed easy-to-clean hard surface floors to replace carpet. Sebastian's condition also required a new
heating and cooling system.
"We had our air quality tested and they found a lot of pollutants and allergens," Guarneros added.
A new $30,000 safe room is in the works.
"One of the first things she said to me was that he can't go outside, he can't touch the grass," said Geoff
Horen, the Lifestyle Group contractor. "So I said, 'Let's bring the outdoors in then.'" They plan to install many
windows.
19 companies and more than 100 people have touched the project. The hope is that in a year, Sebastian may
be able to integrate more. Avoiding setbacks takes dilegence.
"[If] something falls, clean it. Somebody walks on the floor, clean it. Everytime he crawls, clean it," said
Guarneros. "Then he has his meds and his feeding schedule that starts at 9am and goes to 10pm at night every
couple hours."
Grandma insists on wearing a mask to avoid the temptation of kissing him and contaminating his fragile body.
The day may come where he can embrace his family, but in the meantime, this family is now reunited at
home thanks to strangers who stepped up.
Visit the family's website dedicated to Sebastian and learn how you can help.
The following companies helped out the Guarneros family:
The Lifestyle Group (General Contractor): (317) 352-9022
31-W Lumber (Donating insulation material and labor): (317) 346-0299
Alpha Construction (Donating materials and labor for addition's roof): (317) 745-4009
Alpha & Omega Painting, Inc. (Donating labor for painting addition): (317) 507-1036
Bullseye Fence Design (Removing and replacing fence): (317) 442-1585
Butz Lumber (Donating framing material): (317) 849-5005
Carter-Lee Lumber (Donating framing material): (317) 639-5431
Control Tech (Heating and A/C modification, donating a new furnace): (317) 873-3737
Exterior Home Improvement (Donating exterior door): (317) 845-4300
Hughes Electrical Connection, LLC (Donating materials and labor for all electrical work): (317)784-2262
iFloor (Donating all flooring and underlayment): (800) 454-3941
Jackson Concrete (Labor and materials for foundation and footers): (317) 490-3399
Luther G. Spears Plaster Contractor (Donation of drywall and labor): (317) 638-1220
Mike Short (Donating labor to dig footers): (317)407-2796
Mite-E-Ducts (Air duct cleaning): (317) 733-1012
Paschal Construction (Installing new flooring, re-tiling bathroom shower): (317) 201-4647
Ray's Trash Service Inc. (Supplying a dumpster for materials): (317) 539-2024
Shelby Materials (Donating five yards of concrete): (317) 782-3200
Thomas J. Pearson Inc. (Monetary Donation): (317) 861-9778
Vickrey Remodeling (Donating labor): (765) 482-7344
White Oak Constuction (Donating siding): (317) 243-7140