Sebastian: The real story of a bubble boy
SCIDS or 'bubbleboy' disease symptoms usually appear in the first few months of life.
Because the immune system cannot protect the baby's body, babies with the disorder
tend to get one infection after another. Some of these bacterial infections may be
life-threatening, including pneumonia (lung infection), meningitis (brain infection), and
sepsis (blood infection).
To make matters worse, SCID patients often don't respond to the antibiotics used to
treat bacterial infections. They may suffer more frequently from ear infections, sinus
infections, a chronic cough, and rashes on the skin.
Early diagnosis of SCID is very important, because without quick treatment, children
with the disease aren't likely to live past age 2.
Written by: Karin Kunze
Publication date 12/17/08
By making a donation of any amount you will be entitled for a quick delivery through
e-mail with a PDF attachment of Sebastian's story
You can save it on your computer for later reading or print it for your convenience.
Size: 148.3 KB
Because the immune system cannot protect the baby's body, babies with the disorder
tend to get one infection after another. Some of these bacterial infections may be
life-threatening, including pneumonia (lung infection), meningitis (brain infection), and
sepsis (blood infection).
To make matters worse, SCID patients often don't respond to the antibiotics used to
treat bacterial infections. They may suffer more frequently from ear infections, sinus
infections, a chronic cough, and rashes on the skin.
Early diagnosis of SCID is very important, because without quick treatment, children
with the disease aren't likely to live past age 2.
Written by: Karin Kunze
Publication date 12/17/08
By making a donation of any amount you will be entitled for a quick delivery through
e-mail with a PDF attachment of Sebastian's story
You can save it on your computer for later reading or print it for your convenience.
Size: 148.3 KB
| This is the journal of my son Sebastian Guarneros a beautiful baby boy born without an immune system |
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